Wednesday, November 7, 2012

You never think it's going to happen to you


It’s been pretty quiet on the personal blog here lately.  For a good reason.  This is the most personal thing I’ve ever written.  It might get a little angry and profane. If you’re easily offended by that, you probably should just stop reading now.
 

It was just an average late summer day. I don’t remember much about it, until that evening. My wife Tanya and I were sitting on the couch in our family room. Out of the blue, she tells me she found something on her left breast. Since it wasn’t my hand, I knew it probably wasn’t good. The knot in my stomach confirmed that. She had a mammogram scheduled and would I go with her? (As if she had to ask.)  She had noticed it the previous Friday and then kept it to herself all weekend, wondering if she was overreacting, panicking over nothing.

She wasn’t.

The mammogram found “suspicious” things in her breast. I have really come to hate the word “suspicious.” It’s doctor-speak for bad news. The biopsy confirmed what we feared: my wife, who I have loved for 17 years, who has put up with me all that time, who gave me two beautiful daughters, who has never smoked, done drugs, or intentionally hurt anyone her entire life, has breast cancer.
 

Holy fuck.


If there is a more horrifying word in the English language than cancer, I can’t think of it. What’s your reaction when you hear that word in a medical sense? Does it make you cringe? It means that person is going to suffer. You think of chemotherapy, radiation, losing your hair, looking sick. It means people give you that “aw, you poor thing” look. It’s just the fucking worst.


For me, the initial shock was horrible. I can’t even imagine what it must have been like for her.  Almost immediately, we plunged into a seemingly endless parade of tests and meetings with doctors. Some of the tests came back with encouraging news. All the doctors agreed it had been caught early, so the cure rate was very high. Surgery was scheduled for Oct. 9. Tanya elected to do a bi-lateral (double) mastectomy to reduce the risk of reoccurrence as much as possible. It sounded so severe to me initially, but if it meant she is here to grow old with, then it’s a price we were gladly willing to pay. We were scared, but optimistic.


Surgery went as well as it could have. The first two weeks were rough. For Tanya, especially, but also for the girls, her parents and family, my mom and stepdad. I have this perpetual knot in my stomach that periodically expands and overwhelms me to the point I can barely breathe. At least I have been able to do things to help her so I don’t feel useless. But if you have ever watched a loved one trying to recover from surgery or illness (or both), you know how miserable it is to watch. I’d carry it all on me in a second if it meant she didn’t have to go through all this crap.


Ever since then, she keeps getting the rug yanked out from beneath her. Going into surgery, we were told that her lymph nodes looked clear. That meant that once the surgery was done, she should be 98% cancer-free. That didn’t last long.  The surgeon came out afterwards and said that she found a lymph node that looked “suspicious” (see, there’s that word again), so she removed several more so they could be tested.


Enough of them came back positive for cancer that the cure rate changed and the oncologist said the cancer was a more aggressive Stage 3 instead of the more easily cured Stage 1. We were stunned.


Because the body has thousands of lymph modes scattered everywhere, the risk of it spreading is terrifying. Because of this, Tanya then had to undergo a bone scan and a pet scan to see if the cancer had spread. The PET scan came back clean, which meant that it wasn’t in any of her organs. That was a huge relief.


The bone scan did not come back clean, goddamn it. The oncologist called Tanya himself. You know that’s a bad sign. It is her left hip. The normal reading on the scan is supposed to be a 2 or less. A “3” is considered suspicious (do you get why I fucking hate that word now?). Her reading was a 9.3.


Oh God, no.

 
A bone biopsy and oncologist visit later, it is confirmed. Tanya’s cancer has spread to her hip. This time, stunned doesn’t even begin to cover it. I’m still speechless. I’m not a cancer expert, but I know what it means when someone has cancer in his/her bones. It changes the cancer level to Stage 4.


It is not curable. NOT. CURABLE.


Later, to me, she says, are you fucking kidding me? How much more of this shit am I supposed to handle? I have no answers. I only have shoulders to cry on.


These past two weeks have been agonizing. Just a month ago, we were being told that it was 98% curable. Come to find out it isn’t curable at all. The best that can be done is to put it in remission. Our daughters are 11 and 9. Tanya has had a long-running joke with the girls that she will live to be 112. That joke used to make me laugh. Not anymore.


I know cancer can strike anyone at any time, but this is just the most unfair goddamned thing. I don’t want to hear any of this “Everything happens for a reason” bullshit, either. There is NO reason for this to happen. Not to Tanya.


Our daughters have asked why this is happening. I don’t have any good answers. I myself have asked for, demanded even, an explanation for why. I have gotten nothing. I need one, or else I will never understand this whole wretched nightmare.
 

I have learned something during all this: most people are kind, decent and generous. The support Tanya has received is nothing short of incredible. Some of that support has come from unexpected places, which is heartening. On the flip side, several people we thought were friends have vanished. POOF. Maybe it’s because they don’t know what to say. It is a brutal situation. Believe me, words often are hard for me to come by right now. While I can understand that, I can tell you that I will no longer be one of those people who avoids a friend in need. Paying it forward may be a cliché, but when you receive that kindness from people, it gives you strength you never expected.


I am hoping and praying (ambivalently) that Tanya keeps drawing on that strength because she starts chemo tomorrow. If you are one of the vanishing friends, you can piss off. I can no longer be bothered by people like you who can’t spare a moment of their precious time to offer support to a friend.

 
Although we’ve been dealing with this for a little over two months now, we’ve only started down this hellish road. I don’t know how, but I will gather all the strength necessary to help my wife and daughters make it through. In the meantime, we plug along day by day. I don’t know what else to do. Like Tom Hanks’ character said at the end of Cast Away, we have to keep breathing because tomorrow the sun will rise and who knows what the tide could bring.